As the holidays fast approach this year I’ve been taking time to reflect on how thankful I am for the friends and family who have been in my life and who have been supportive through my challenges, including my current medical challenges.
I would love to see those that are in town for the holiday season, as well those who live near, while I can still talk and hand out hugs. Please reach out to me if you have a time that you would like to catch up before the end of the year! I would love to see you while I can still communicate.
To begin with, I learned many things at my last ALS Clinic at Baylor Neurology on November 8th. After Thanksgiving I plan to explore feeding tube and tracheotomy options. The other course of action presented is to continue my fight of this disease with the assistance of the ventilator and see what course the disease plans to take. I am letting God continue to dictate my care and show me the way.
As I compose this note, I should further address my physical health. We are all working hard to stay on top of my nerve pain in my legs and feet. I am on a ventilator 10-12 hours over a 24-hour day. This time is mostly when I’m sleeping as it allows me to conserve the most energy while still being able to breath. I am increasing my time on the ventilator during waking hours as my breathing becomes more difficult and to conserve energy to doing activities I value. I also use a cough assist device twice a day to help my lungs expand and keeps the mucus from building up. Last critical health concern is: Fatigue. Fatigue. And more Fatigue.
Despite it all, my main hobbies continue to be eating and breathing. Kidding aside, my hobby is truly about glorifying God. I want to continue to serve and give out as many hugs while I still can; then remind them how much that they are loved. I want God’s will be done!
Here are the most frequently asked questions I receive along with my answers:
Are you still mobile?
I cannot walk but I now have a custom fit M3 power chair that can fly. My chair also has the seat elevation and forward tilt. This comes in very handy especially when I want to reach the candy in the upper kitchen cabinets and cookies shoved to the back of the counter. Lastly, it is black with carbon fiber accents and three spoke chrome hub caps.
What can’t you do?
I would rather focus on what I can do. I try not to look at my circumstances but instead turn my focus on God. Jeremiah 29:10-13
What about your strength?
Each day I notice a decline in my health. My ability to transfer from one place to another has become much harder. Training will begin this week on how to use a Hoyer lift. I insist that the family tries lift on each other before trying on me! God is still holding onto me. I am reminded that “I can do all things through Christ to strengthens me.” Philippians 4:13
What is next for you?
Find out about the timing a tracheotomy and a feeding tube. Continue stretching and receive massage therapy. Pray for God’s will and His timing.
What can we do for you and your family?
Your prayers are being heard. God is responding. This new season in life has afforded me so many opportunities that I would never experience any other way. Fellowship is one of the high on our list.
How can we stay in touch?
Message me, text me, email me and/or call me; then come and see me. My family and I need to stay connected. We all need to stay engaged. Fellowship is welcomed.
My early thought remains true today.
This has never been about me. It is about serving others. It is about finding the cure.
Predestined at birth, God already knows my future. May His will be done and He be glorified.
With all my love and prayers,
Ronald C. Janca
‘But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore, I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.’
2 Corinthians 12:9-10